Suffering from a debilitating disease is no doubt incredibly difficult. The once automatic ability to walk, dress, write, speak, swallow, or even breathe can become hard work. But the disease also can be a burden for the family members that need to step into the role of caregiver for their parents.

Caregivers love their parents and only want the best for their long-term care. Unfortunately, that can mean sleepless nights, stress, and struggle that puts the caregiver’s health at risk as well. 

Children that are devoted to caring for a parent with a debilitating disease lose their childhood in the name of love. The American Psychological Association reports that approximately 1.3 million people between the ages of 8 and 18 serve as caregivers for sick or disabled relatives... 

These young caregivers will find themselves devoting much time and resources to provide care and of course it’s the right thing to do for the ones they love. 

But we need to ask important questions for the family members that are willing to devote their lives selflessly: Who is going to pay for the care? What happens if families can’t handle the job they’re asked to do? 

Our country needs to do more research to better understand the needs and provide services to young caregivers. 

Tax credits may be a good place to start  to alleviate some of the financial burden of a suffering parent. Other countries such as as Great Britain and Australia already have programs in place to compensate caregivers. It’s unfair and no one's fault when someone suffers an illness. We need to step up as a country and not let the responsibility fall on the individual family.